About Us

Jesse Was Here — a program of Beyond Type 1 — provides resources, support and tools for those navigating life after a Type 1 death. Here you will find:

  • Resources for the early days, weeks and month — from planning a service or creating a memorial fund to thoughtfully removing your loved one from social media or explaining Type 1 to others.
  • Stories from those who have experienced loss — some after living with Type 1, others due to a missed diagnosis.
  • Connection with others — fellow parents, siblings, spouses or loved ones — in private groups in the Jesse Was Here app.
  • Opportunities to celebrate your loved one through legacy projects, engage in raising awareness about Type 1 or support others navigating loss.
  • Additional content as we build this important resource.


Jesse Was Here was inspired by Michelle Bauer (Alswager)’s experience after the sudden death of her 13-year-old son, Jesse, from Type 1 diabetes. Grieving the loss of her child, and the potential loss of the diabetes community, she created an online community to support parents who had also lost their children to Type 1 diabetes. By connecting with others who shared her experience, she realized many of those seeking support and opportunities to honor their loved ones, also struggle with unexpected funeral expenses, ongoing medical bills and sometimes even the funds for a headstone. Through her efforts, she discovered many others — not just parents of young children — were looking for peer support, practical information, coping tools and financial assistance. Working together, Michelle and the team at Beyond Type 1 are creating a very special program to serve this unique and deserving community.


Your generous gift will allow the team at Beyond Type 1 to provides resources, support and tools for those navigating life after a Type 1 death. Thank you for being a part of this special program to serve this unique and deserving community. Click HERE to donate.

Who is Beyond Type 1?

Founded in 2015 by Juliet de Baubigny, Nick Jonas, Sarah Lucas + Sam Talbot, Beyond Type 1 is leveraging the power of social media and technology, changing what it means to live with a chronic disease. By educating the global community about this autoimmune disease, as well as providing resources and supporting those living with Type 1 diabetes, Beyond Type 1 is bridging the gap from diagnosis to cure, empowering people to live well today and funding a better tomorrow.

Founders + Leadership support operational expenses so that 100% of every dollar raised directly supports the most promising global efforts and programs working to educate, advocate and cure Type 1 diabetes. Beyond Type 1 is a 501(c)(3) tax-exempt nonprofit organization, under charitable ID #47-3336640.

Read CEO Sarah Lucas’ letter introducing the program HERE.